Apologies for not updating the blog recently – I have not felt up to it until now.
For some (still unexplained) reason my pain increased and
caused my condition to deteriorate rapidly over a period of a couple of days
leading to dehydration and subsequent problems requiring admission to hospital
for tests and treatment. I then had severe diarrhoea (again unexplained) which
slowed progress in rehydrating me.
I am now at home, feeling much better, on increased doses of
pain killers, eating better, and am ready for second round of chemotherapy
which starts on Wednesday the 13th of March.
Sunday 3rd – feeling OK – some side effects from
chemo – no appetite, some increase in wound pain from laparotomy scar but
otherwise basically OK apart from some constipation.
Monday 4th early morning – woke in the night with
increased abdominal pain. This continued through the morning. Increased
painkillers. Still no appetite. Could not lie back – more comfortable upright.
Tuesday 5th – abdominal pain had not subsided –
called oncologist and was advised to increase pain relief. In the mean time was
still not eating and had difficulty with keeping up hydration – also still constipated.
Wednesday 6th – pain still had not subsided. Called surgeon
and arranged urgent visit.
Thursday 7th – Surgeon examined me and immediately admitted me to hospital for tests
and treatment. By this stage I was not feeling at all good – seriously dehydrated
and feeling very weak.admitted to hospital at 3PM – had a CT scan
and blood tests, and on a saline drip. Discovered that the port installed to
assist with chemotherapy was not working (could not draw blood from it) so had
a radiologist examine – he discovered that the end of the catheter in the subclavian vein was
close to the vein wall, so port wouild allow fluid going in, but attempts to draw back from the port
caused a "valving" action against the vein wall.
Thursday 7th – results of CT showed some blood
clots on the lungs so started anticoagulant therapy (Clexane) - no conclusive answer
on abdominal pain however. Still on saline drip. Still constipated so started treatment
Thursday 7th overnight – Laxatives started to work – so well in fact
that I had raging diarrhoea. Hospital staff concerned about possible gastro.
Took a stool sample for testing and took steps to isolate me. Diarrhoea not
Friday 8th – moved to private room for
precautionary isolation. Discussed causes of abdo pain with oncologist and
surgeon. Neither had a clear explanation but suggested could be caused by
cancer growth and best to treat pain and continue chemotherapy. The goal from
here is to get me ready for next round of chemo.
Friday 8th overnight – continuing diarrhoea.
Saturday 9th – discussed caused of diarrhoea with
oncologist. He said that the onset was later than would be expected if it was a
side effect of chemo, but given constipation earlier this was not out of the
question. No results on gastro tests, but neither the oncologist nor I believe it
Sunday 10th – still no test results. Decided to stay in
hospital one more day to get a clearer answer on cause of the diarrhoea and to
get more fluid input from drip.
Monday 11th – still no test results (blame the
long weekend) – time to go home. Will be back on Wednesday for second chemo
session and presumably will get the results then. Discharged from hospital at
Tuesday 12th – At home and feeling better – have some
appetite back and drinking plenty of fluids. On higher doses of painkillers and
pain is under control. Am feeling much stronger and am ready for next round of